tag:blogger.com,1999:blog-3415199604755247205.post4287599401028911419..comments2023-11-09T23:27:25.841-08:00Comments on Thankful for Every Day!: Still working on recoveryElizabeth, John, Jack, and Lukehttp://www.blogger.com/profile/10177382087963521875noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-3415199604755247205.post-37352712983996276282013-02-21T21:51:23.912-08:002013-02-21T21:51:23.912-08:00Elizabeth I came across your blog while searching ...Elizabeth I came across your blog while searching the internet for information on cavernous angioma's. I was diagnosed about 3 month ago because I started having symptoms. About a month after my first bleed I had another bleed. The angioma is in my thalamus. I have been told by two different Dr's to wait and see and one who is recommending surgery. To be honest with you both options scare the heck out of me. I have improved from my bleeds but only about 80%. I don't know how I am going to make this decision. The Dr who is recommending surgery feels very confident that he can safely get in and remove it. He makes it sound so simple that it scares me. What was your experience? Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-43515560249352973522012-03-23T15:37:08.204-07:002012-03-23T15:37:08.204-07:00Oh and of course, the solution for all problems &q...Oh and of course, the solution for all problems "in the head" is Prozac. Never mind that I'm not depressed. ;)Elizabeth, John, Jack, and Lukehttps://www.blogger.com/profile/10177382087963521875noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-46222587136901067132012-03-23T15:23:26.713-07:002012-03-23T15:23:26.713-07:00Kinda funny to read this post today, as I'm fe...Kinda funny to read this post today, as I'm feeling mildly defeated after a terrible md appointment today that I held out hope might be part of the solution. These neuros are just bumbling around, hoping nobody figures out how dumb they are. Urgg! The idiot today basically told me all the problems I had/have are in my head. I always sort of agree, yes I had a bleeding angioma, and now I am a stroke survivor(all problems "in my head")...clown! Anyway, seems it's back to independent study/rehab. I need to post an update of the past month, its been eventful in a not so great way. :)Elizabeth, John, Jack, and Lukehttps://www.blogger.com/profile/10177382087963521875noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-44044104556604023532012-03-23T13:33:49.755-07:002012-03-23T13:33:49.755-07:00Elizabeth - it's refreshing to have your posit...Elizabeth - it's refreshing to have your positivity around in the angioma community. Having hope is what motivates life, and you have no shortage of any of it :) I hope this past month has treated you well (I suppose I should check the forums!) :P Update soon!Crystal https://www.blogger.com/profile/07541557479055817343noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-74452347051114956552012-03-05T20:50:13.468-08:002012-03-05T20:50:13.468-08:00Thanks Rebecca!! I sure wish it would have worked ...Thanks Rebecca!! I sure wish it would have worked for me. In the past 3 months I drank so much, I actually got low sodium. Since then, I've decided to stay way from home remedies. That's why I'm finally seeing a urologist tomorrow. Been waiting more than a month to get in. When they said I had to wait this long to be seen, I thought/hoped I'd be "cured" by the time the appointment arrived. No such luck! :( I hope he has answers!!Elizabeth, John, Jack, and Lukehttps://www.blogger.com/profile/10177382087963521875noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-11155778266834855142012-03-05T20:42:32.002-08:002012-03-05T20:42:32.002-08:00Oh thanks Christopher!!! Not quite sure about bein...Oh thanks Christopher!!! Not quite sure about being the strongest...just trying hard to be my best everyday...some days are better than others. ;)Elizabeth, John, Jack, and Lukehttps://www.blogger.com/profile/10177382087963521875noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-73414689219585164472012-03-05T20:38:42.501-08:002012-03-05T20:38:42.501-08:00As always, thanks for the encouragement and messag...As always, thanks for the encouragement and message of hope!!!Elizabeth, John, Jack, and Lukehttps://www.blogger.com/profile/10177382087963521875noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-80388332460703313132012-03-02T17:34:03.545-08:002012-03-02T17:34:03.545-08:00Yes, thanks for sharing your struggles and success...Yes, thanks for sharing your struggles and successes too. It's helpful to know that I'm not delusional in hoping/thinking I will get better.Elizabethhttp://thankfulforeveryday.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-35293481737972082002012-03-02T17:27:07.336-08:002012-03-02T17:27:07.336-08:00Thanks Grace. It just seems wrong to have fatigue ...Thanks Grace. It just seems wrong to have fatigue and insominia. I recently started having insomnia too...its definatly making things worse. I can't imagine the horror of aphasia. Had I lost my voice...I don't know where I'd be. That seems like one of the worst possible deficits. Agreed, doctors appts. are draining, but with my "new" kidney uti issues...I need medical answers. I've tried to wait it out for 3months now....and I'm not getting better. I'm also interested in an expert evaluation/treatment plan for my fatigue/sleeping issues. We'll see.elizabethhttp://thankfulforeveryday.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-70840513978548823112012-03-02T17:15:56.233-08:002012-03-02T17:15:56.233-08:00Thanks Dean. I do always try to stay positive and ...Thanks Dean. I do always try to stay positive and not get depressed about what's wrong, although this fatigue really is a huge problem. I know how lucky I am...even if this was the end of my recovery....which I will never agree to unless I am fully satisfied... Not even close yet!! I always hold onto the hope that I will recover eventually, and am forever grateful for where I'm at today....I could be much worse off...or dead. I'll take this over the alternative anyday. I am looking forward to my appointment with a UCLA stroke expert in a few weeks...always hoping I can find someone that knows something.Elizabethhttp://thankfulforeveryday.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-86600523609782289662012-03-02T16:58:34.813-08:002012-03-02T16:58:34.813-08:00You are the strongest person I know! Keeping you i...You are the strongest person I know! Keeping you in my thoughts and prayers daily!<br /><br />-ChristopherAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-91859315471957407542012-02-28T08:58:47.085-08:002012-02-28T08:58:47.085-08:00You probably already know this, but cranberry juic...You probably already know this, but cranberry juice is good for utis. Research has shown that cranberry juice makes the wall of the bladder slippery so bacteria cannot stick to the wall and grow.Rebecca Duttonhttps://www.blogger.com/profile/09004104301521792927noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-64189687489757009852012-02-27T08:58:47.521-08:002012-02-27T08:58:47.521-08:00I too vote for fatigue as the long lasting big pro...I too vote for fatigue as the long lasting big problem. Pretty sure your little guy will continue to be part of the the love but not the solution. I am sure that I am gradually building up more endurance at almost 4 years.<br /><br />Medications are so tricky to balance at the best of times. I had a bit of a collapse last week and it looks like it was because I took my BP medication in the morning (fell asleep on the couch before taking it the night before) too close to exercising in the warm pool.<br /><br />One of my stroke group ladies always uses a phrase that I want to share. "Keep on keeping on!"Lindahttps://www.blogger.com/profile/11714725782520722613noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-21485645127681673312012-02-27T08:07:53.422-08:002012-02-27T08:07:53.422-08:00I'm 8 years post-stroke and the fatigue gets b...I'm 8 years post-stroke and the fatigue gets better so don't lose hope. Having had several setbacks myself I know how discouraging they are. I'm so glad we have a small community of people who can relate to what each of us is going through.Rebecca Duttonhttps://www.blogger.com/profile/09004104301521792927noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-7498610193619963882012-02-27T07:45:13.762-08:002012-02-27T07:45:13.762-08:00My biggest problems are aphasia and fatigue/insomn...My biggest problems are aphasia and fatigue/insomnia. It's getting better, but so slowly. Having a toddler doesn't help with the fatigue, I'm sure! In general, groups (aphasia, stroke, adaptive yoga, etc) have been more helpful than specialists. Doctor appointments exhaust me.Grace Carpenterhttps://www.blogger.com/profile/01728427612743156573noreply@blogger.comtag:blogger.com,1999:blog-3415199604755247205.post-33885687796678745132012-02-26T22:09:46.303-08:002012-02-26T22:09:46.303-08:00Fatigue has to be one of my depressing affects of ...Fatigue has to be one of my depressing affects of the stroke and no one in the world seems to know anything about it.oc1deanhttps://www.blogger.com/profile/02302555382262295577noreply@blogger.com