Supporting Angioma Alliance and finding a cure for cavernous angiomas

All you SoCal folks and anyone willing to travel...Here's your chance to come out and support Angioma Alliance and all the wonderful work they do. There is an upcoming walk in Pasadena. It's part of the Walk Anywhere campaign, so you can actually walk wherever, but it's more fun to walk together...so come out and join us or you can just donate on my page and I will do the walking. :)  All the proceeds go to Angioma Alliance because brains shouldn't bleed. Please mark your calenders, sign-up, donate, and join us as we limp/walk/run/move along for a cure! I will add the details as I am made aware, but right now, you can sponsor me. I will be there positively!

Donate to my Walk Anywhere for Angioma Alliance Fundraising Page

Insight from an old friend

I'm not sure what happened to Brooke aka Otownmama. I assume she has been "cured, got to move on past this whole angioma thing, and has gotten on with her life. When I was newly dx with a cavernous angioma, so was Brooke. She had small children at the time and this dx, shook her up in a very bad way. We were both going through a lot of the initial, shock, horror and fears that come with this dx at the same time. She ended up having surgery with Dr. Spetzler and then she disappeared from AA. That's a good thing, I assume. When she was struggling she wrote something that I think of often, so I thought I would share it.

The benefits to having a cavernoma......

On a lighthearted note...I have been trying to get past the shock and be more positive about things.  These are some things I've gained from having a cavernoma and I would love to hear yours!

10.  I don't have to look like a wimp when I don't want to ride a roller coaster.
9.  I just got spend money on new jewelry and order a super cute Medical ID bracelet that looks like I just got back from Tiffany's.
8.  I now have a chauffeur to take me places (aka husband, mom, friend, etc.)!
7.  Extra dates with my hubby when we stop to grab a bite on our way home from all these dr apt.'s.
6.  Thinking twice before judging someone, like the mom who doesn't take her turn driving kids for preschool fieldtrips (or who forgets there was a fieldtrip that day;)).
5.  More faith.
4.  More sincerity in prayers.
3.  More laughing (and crying).
2.  More time playing, less time cleaning.

And the number one reason I'm glad I have a cavernoma...

1.  It gave me a new perspective on life and what is really important.

I agree with most of what she wrote especially #1! Except, I would love to ride roller coasters with my boys!:( I thought that since I had surgery that I might be able to ride them, but since my hopscotch disaster, I am not taking any risks on that front. I will just have to cheer them on from the waiting area, and acknowledge their bravery with a smile that says I'm glad I'm here even if I can't ride with you :) !!!