The "spoon theory" came to be by a woman living with Lupus. While brain injury and Lupus are two very different conditions we share common ground in experiencing extreme lack of energy or "fatigue". While I am always grateful that I have had an amazing recovery and in the big picture...I am doing quite well...my life is changed drastically. I am now a true energy conservationist...not in the green, granola sense, but rather the practical, physical sense. I try to think of the "easiest" (least energy expenditure) way to do everything now. I try to come up with activities that are still stimulating for Jack...but cost me little energy. We read a lot of books, color, practice writing, play puzzles, play with Playdo, and we have enjoyed his water table all summer. I am so happy to be able to be raising my little boy, even though I think my parenting style has changed to adapt to my limitations. Watching him grow and thrive is like medicine for my soul, and the greatest gift in the world! This rigorous energy conservation and trying to gauge my energy is a whole new concept for me. I'm not very good at gauging my energy...I just seem to reach the place of being DONE with little or no warning. I have run out of energy a few times and thankfully John was able to save me, but it is something I now think of on a daily basis. Unless you are in or have been in this situation, I think it is hard to understand or relate to. I hope someday it improves or resolves, but for now the "spoon theory" pretty much sums up what a day in my body feels like....Of course...I'm still eternally THANKFUL that I get another day...no matter how limited it might be! This certainly beats the alternative or a number of the worse scenarios we could have been faced with. I think one bonus of this whole new perspective is that the things I "get" to do have an infinitely greater meaning...there is no wasted energy around here only thoughtful desired activities get done these days.
Welcome to our blog! I originally started this blog in November 2010 just prior to having a major brain surgery to remove a large bleeding cavernous angioma from a deep part of my brain. You can best understand the gravity of our experience by reading the first several entries.(Nov 2010-Dec 2010) I wrote the first one and my sweet, adoring husband, John, wrote the next several (while I was too sick to do much of anything) that documented surgery, immediate recovery, and our reaction to the surgery complication (stroke)that was revealed 2 days after surgery. This recovery process has been difficult but we are making it. We appreciate all the kind words of encouragement we have received and we would like to thank everyone that has participated in helping us along this difficult journey. Also, if you have any questions about my personal experience, please leave them as a comment or contact me directly at firstname.lastname@example.org and I will respond although I am not a doctor and this is not a replacement for medical care or advise. Please ask a real professional, or probably several. :) I hope to be able to help at least one person along the challenging road of brain surgery and recovery.