Welcome to our blog! I originally started this blog in November 2010 just prior to having a major brain surgery to remove a large bleeding cavernous angioma from a deep part of my brain. You can best understand the gravity of our experience by reading the first several entries.(Nov 2010-Dec 2010) I wrote the first one and my sweet, adoring husband, John, wrote the next several (while I was too sick to do much of anything) that documented surgery, immediate recovery, and our reaction to the surgery complication (stroke)that was revealed 2 days after surgery. This recovery process has been difficult but we are making it. We appreciate all the kind words of encouragement we have received and we would like to thank everyone that has participated in helping us along this difficult journey. Also, if you have any questions about my personal experience, please leave them as a comment or contact me directly at thankfulforeveryday@yahoo.com and I will respond although I am not a doctor and this is not a replacement for medical care or advise. Please ask a real professional, or probably several. :) I hope to be able to help at least one person along the challenging road of brain surgery and recovery.

Friday, December 31, 2010

2010 What a year?!!


Hello all

As I begin to write this update I can barely believe that 2010 is almost over and ALL we have been through this year. As I was first diagnosed with a cavernous angioma in my brain in September 2009, we knew last New Year's Eve that 2010 was going to be a big year of making important decisions regarding my health. While last December 31st was just the beginning of us finding our way, I am still in awe of how far we came in just one year! I would have never believed that I would decide to have major brain surgery (considering I am an incredible wimp and "elective" brain surgery originally sounded petrifying to me, but the alternative became even more daunting as time went on), end up with a stroke, and make a nearly 75% recovery from the stroke in three weeks, and all of this in a year’s time! Crazy!!! One thing that has not changed or perhaps is more clear than ever is my commitment to be thankful for all that each day has to offer and my thankfulness for being married to such an amazing man (John you are the best!!! I couldn't imagine traveling this journey without you!!!) and my immense gratitude to share in raising our precious little boy!


As we toasted at New Year’s Eve last December 31st, I would have never anticipated the amount of challenges that we would face in 2010 and I am hopeful our most difficult days are in the past! 2011 will be all about completing my recovery and getting back on track with a more precise focus than ever before. While in rehab I thought many times that I didn't need this type of character building but I got it non-the-less! I guess you can never have too much character...right?????? What a humbling experience to wake-up at 36 years old and not know how to tie your shoes!! Glad to have re-mastered that now!

As we reflect on all 2010 brought us, gratitude continues to be the theme. There could never be enough time nor words to thank everyone that has helped us along the way, especially this past year and on this blog. We appreciate everyone’s kindness and helpfulness in all ways...more than we could ever express!! I may have made a miraculous recovery but that was only possible because of all the love and encouragement that was received on my end. THANK YOU THANK YOU!!!

While our midnight toast may look a little different this year (water only for me), it will be extra sweet since we are no longer burdened by wondering when my brain might decide to bleed! YEAH!!!! Another year to come... to live!!! CHEERS, HAPPY NEW YEAR! We wish you all health, happiness, and much love in the year to come. Let this be your best year yet!!!!

I will continue to take it one day at a time... and I'm still getting better every day! J

Now more than ever we are truly "Thankful for Everyday"!

From John, Jack, and myself - love to you all,

Sunday, December 26, 2010

Day 17 Sunday, December 26th


The past few days have continued to be pretty good days for Elizabeth. Christmas Eve was a pretty slow day with Elizabeth being pretty tired. I think this was from the day before being such a busy day.  She slept a lot and did some exercises. Jessica was here in the morning (Friday) for a few hours to help. I was then able to do some needed things around the house and yard. This whole thing has been quite an adjustment for Jack and he is doing pretty well. Elizabeth and Jack slept in the afternoon. Once they woke up, we then decided to check out some Christmas lights at some neighborhoods around us that are known for great light shows. We arrived at the street with many lights to Jack saying “ ights, ights”. We put him in the stroller and headed out for a walk. Elizabeth was doing well at this point except it was a bit chilly. It was around 50 which is cold for us at that time of night. We walked up and down the streets with Jack saying “Ohhh” and “Wow” the whole time while pointing at all the lights as I filmed some video. We saw many snowmen or “amen” as Jack likes to call them and whenever we see Santa he says “HO HO!”  We were able to do all this without her nudging me off the curb like she would do at the rehab center as she would drift to the left. That has gotten better. We walked about 500 feet and she started getting tired. This has pretty much been the standard through this whole thing. She is able to go in short burst and then needs rest. It was really nice to get out and check out the lights! It was a fun time for all of us. Again, after all we have been through, I am so grateful to be able to do an outing like this two weeks after the complication that happened during major brain surgery! She has made really great progress in these last two weeks. We are hopeful that continues.



Christmas day was a really nice day all around. She was feeling better than the previous day which we feel was due to her resting and not having such an eventful day on Christmas Eve. Elizabeth’s dad Nick, Step Mom Marti, and Brother Christopher arrived at our home in the morning. It was a really nice reunion as they had not seen Elizabeth since shortly after the surgery in Phoenix. I could tell they were eager to see her! They were very happy to see how much better she was doing. We visited for a while over coffee and sweets and then with help from us, Jack opened some of his many presents. Some of the big hits were a Mr. Potato Head, a talking helicopter, a pedal car with cool flames painted on it, and a talking Elmo game... just to name a few… It was a really great time for all of us. Her left side was so weak after the surgery she could barely move her left arm, as well as speech and left side face were really troublesome… but on this day I looked across the room at Elizabeth smiling and talking so much better than 2 weeks ago - I thought to myself - man this progress so far is amazing… I’m so thankful! We then put ornaments on the tree from Elizabeth’s Dad and Marti, as well as Elizabeth’s Aunt Nicolette and Grandma Tirabassi.  The tree is coming along nicely! She really loves looking at all these special well wishing ornaments that have arrived so far. Elizabeth’s mom Michelle and Mimi Ruth arrived later as well. Elizabeth barely made it through this second round of visitors. Michelle brought some amazing food that we all ate and Elizabeth and Jack then went down for a nap. I had slept this afternoon as I too am starting to catch up on sleep. We awoke as Nick and Marti arrived back at our home after they visited at Elizabeth’s sister’s house and with our help Jack opened the rest of his presents. We also ate a tri tip meal that Elizabeth’s mom had prepared for us earlier.  The meal was awesome! Thanks Michelle! She also got to finally have some, now world famous, Rite Aid/Thrifty’s Chocolate Malted Crunch ice cream! In a word, her quote was -  “delicious!”

All in all it was a very eventful, joyful day. It was a Christmas that will definitely be remembered!  Thankfully Elizabeth is able to be up and about for a few hours at a time and enjoy some of the festivities of Christmas. It is one of Elizabeth’s favorite times of year and I was so happy to see her doing better and enjoying it in our own home!

Thanks again for all your nice comments, texts, emails, cards, and calls… They mean the world to us and have given us immense strength during this challenging time!

Elizabeth continues to inspire me every day! I love her so much!

I hope you all had a very Merry Christmas!

We will update soon,

Thanks so much…

John

Thursday, December 23, 2010

Day 14 Thursday, December 23rd

HI everyone! This is John writing…

Today was another day of heading in the right direction! Elizabeth continues each day to show signs of improvement.  We got up when Jack got up which was about 9:00. He still likes to drink milk in the morning out of a bottle when he gets up. This is what Elizabeth calls her special cuddle time! He lies on his back and drinks the bottle and she cuddles up next to him and rubs his arm, leg and face. It’s sort of like true bliss when you see them there both enjoying the moment. She really missed that special cuddle time. It’s so great to see that again!

Elizabeth’s Mom Michelle came over to watch Jack while Elizabeth and I went to her first neurologist appt. post surgery. The Doctor was impressed with how well Elizabeth was doing and reviewed the MRI images as we all talked about the details of all that happen the two weeks we were in Phoenix. The Neurologist gave Elizabeth a lot of credit for being brave to have the surgery and she also said “that thing was on the move… you did the right thing”… She also said" do realized you just saved your life??... you're a miracle!" The doctor then talked about how Elizabeth looked a lot better than the MRI. The latest pre-op MRI showed a recent bleed as well. We looked at all the post-op film and it’s just an amazing sight to see the hole left behind in her brain. The brain should naturally in time fall back into place where the malformation was. I guess now if someone asks if she has a hole in her head, she can say, “Yes, I actually do!” When we met with the Angioma Alliance folks at the hospital, they joked about an alliance T-shirt that some people get that reads “I had brain surgery, what's your excuse?”. The Neurologist gave a very thorough exam and continued to be impressed considering where Elizabeth was 9 days ago. The Neurologist wrote a prescription for intense outpatient rehab which will be in Northridge 3 days a week as this was the best recommendation that wasn’t too terribly far from our home. She also wrote a referral to a Neuro ophthalmologist. We’ll see if he’ll take the referral… It’s crazy to me how few Neuro Ophthalmologist there are in the world. There is something like two in Phoenix and two here. Hopefully we can get there soon and they can offer some insight into why her eyes are making her kind of dizzy and feel a little sick. She was able to post yesterday as you saw, but it’s hard to look at the screen for too long. It also makes her tired… but she was able to put that post together before she had to sleep. She will be writing more in the future as her eyes and tiredness permits typing and looking at a screen.  

We stopped and got lunch on the way home and she ate well. Her appetite is back and she ate her entire lunch. She is fairly underweight but that will come back soon. We got home and she was pretty tired. She went to sleep and I relieved Michelle from her baby sitting duties. Michelle made a fresh soup for Elizabeth that was out of this world! It’s a little bit like soup and a little bit like stew so her Mom calls it stoup. I never had stoup before today but I can tell you it’s delicious. Elizabeth said “she can keep all this yummy food come’n”. I then did stuff around the house as we are still getting situated and unpacked from the trip. I purchased a small tree (4 ft.) and set it up today. I put it on top of a buffet that sits in the family room. This way Jack can’t get to it either. We put a few ornaments on it that have already been giving to Elizabeth. It really made that little tree start to come alive. I had made a suggestion in a post a few days ago if people wanted to send a well wish to send/give an ornament to her. It will be nice to keep adding to the tree for the next few weeks and we’ll probably leave it up until a few days after the first. It was fun to get the little tree started. It will definitely be a Christmas to remember.She can enjoy the ornaments forever and remember all this healing power.

Tonight was pretty mellow as she played with Jack for quite a while. She also keeps reading him a lot of books because it helps with her speech. Jack really likes the extra book readings. Hopefully tomorrow we’ll get to get outside more because the weather is becoming nicer finally as it’s been raining off and on for 5 days. She is craving the sun… tomorrow it should be out!

Tomorrow night (Christmas Eve) we were going to try to go to see some Christmas lights in a neighborhood near our home where every single house is decked out with lights. Jack really likes Christmas lights and so do we so that will be a lot of fun.  It will be quite a sight after all we’ve been through in the last two weeks and the last year and a half for that matter…. to see my beautiful wife walking down the sidewalk with my beautiful little boy admiring all the beautiful lights!  How great a place in life to be… as so grateful for such little things as these!

Elizabeth’s progress continues to be better and better! We thank all who have given their warm wishes, love and support. This energy is a very powerful thing.

Thank You!

We want to wish you all a very merry Christmas! Remember to cherish the people you love every second of everyday!!!
  
We will post again on Christmas….

Thanks,

John                                                                                                                                                      

Wednesday, December 22, 2010

Day 13 No news is good news!


Hello to all!!! This is Elizabeth writing!!!


OK, I'm back not quite 100%...but I'm feeling pretty good considering the circumstances. So we got in about 8:00pm last night and our trip was rather uneventful...thankfully! Today I mostly rested all day, I took a shower and practiced some of my exercises which felt good. I want to make sure I keep moving exponentially in the right direction. There is at least one thing stronger than this so called "brain damage from the stroke"...and that's my will to get back to being "me"!!! So it's time for practice, practice, practice! I have a doctor's appointment tomorrow with my neurologist so I'm hopeful she can point me in the direction of a great outpatient rehab that's local. I tried to get an appointment with the neuro-ophthalmologist but he said I need a referral. I told the office girl...I have a PPO… just had brain surgery and am having tremendous problems with my eyes, I'm referring myself. She didn't buy it...so I made an appointment with the regular ophthalmologist for next week.... so I guess it's gonna be awhile before I get my eyes all fixed up. I was hoping that getting people to take me seriously was not going to be a problem after surgery...I don't think they just cut your head open for fun....duh..there’s something wrong!!! My eyes are worse than ever and I would like to get them fixed ASAP. They currently are a huge source of discomfort...AKA dizziness. I guess it's going to be a few weeks before I can work on fixing my eyes :(

 Again I would like to thank everyone that has helped along our journey and everyone that has offered kind words of love and encouragement. I'm sure the positive energy helped me to meet milestones that were equivalent at times to miracles. Thanks so much to each and every one of you! Thank you, thank you, thank you!!!!! 


I will write more soon...


Elizabeth

Tuesday, December 21, 2010

Day 12 Tuesday, December 21st



All I can say is, man.. what a day! There was so much going on today I don’t even know where to start? So I guess I’ll start the best spot… the beginning. The day started out with me waking up to putting all the bags in our SUV while Jack was still asleep and that continued after he woke up. My sister Rebecca was able to take a few hours away from work to help me get out of her house and help me get Elizabeth out of the neuro rehab center with Jack in tow.  My brother in law Tom left for work and I hugged him and told him how much all his help meant to Elizabeth and me. I told him how lucky we are to have him in our family! It was an emotional moment.  I finally got all our stuff in the car as it barely fit coming here and we went back with a few extras for Jack from Rebecca and Tom. (Hand me down toys) and Christmas presents as well. Jack and I proceeded to the hospital as Rebecca fallowed.  


Elizabeth was excited to see us and her Big Boy and was organized and ready to go.  We started to work our way though the facility to the exit and say our goodbyes and Jack was waving and saying “Hi, Hi” to everyone. It was definitely an emotional departure from the facility to say the least. This is a place that has put Elizabeth on the right path to recovery. We are truly grateful for each and every one of the staff members at Barrows Neuro Rehabilitation Center! We continued to exit the center as people gave Elizabeth pats on the back and said “look at you, you’re doing great” and “good luck” as I filmed this big moment of her leaving the facility. It was awesome to see her walk out of that place so much better then when she was wheeled in! It was a great  site to see! She continues to look and sound better each day!


We got to our vehicle and loaded Elizabeth’s bags. We then said our goodbyes to Rebecca which was hard and good as she has grown pretty attached to our little guy and we are so extremely grateful for her. My sister Rebecca and my brother in law Tom have been a gigantic part of us getting thru and getting to this point!!! We all hugged and cried good tears. Thanks Rebecca and Tom... you guys are the best!


We had one more thing to do before we left and that was to get some prescriptions filled. We had to wait a bit and got some lunch before we picked up the prescription and started to head back to Valencia, California. 

The trip started out good as we avoided rain during all the loading. Once we got going, Elizabeth felt good with the movement of driving and did not feel motion sickness. Jack passed out in about 15 minutes and the grey rainy weather is good for his sleeping. They both slept for the first two hours. They both continued to have a good go of it although I was driving in the rain. It wasn’t too bad until we got about two hours from home and we hit heavy rain as darkness fell. We also hit some traffic… but Elizabeth and Jack both did well. The traffic made us get home later than we were hoping for but we all were so happy to be getting home including Jack as for the last five minutes of the drive he kept saying “out, out , out!” It was a great feeling driving into our dry garage! Home at last!!!


Elizabeth’s Mom Michelle was there to greet us not with just her face but with food cooking in the oven and groceries in the fridge! Her sister and brother came over to help Michelle get situated with goodies for us. Elizabeth’s brother Christopher, who is a very talented artist, drew a big “welcome home sweet home” sign! The sign was a really cool thing to see right when we walked in!!! It was really nice to come home to. It was a really nice feeling to be in our own home!!  We sat down and had an amazing meal prepared my Michelle who is a phenomenal cook. It was really nice for Elizabeth and I…. and Jack too! Michelle helped Jack take a bath as I started to get Elizabeth a few things so Elizabeth could get ready to go to bed as she was really tired as could be imaged. Elizabeth read Jack some book’s on our bed and she then went to sleep saying: “this is gonna be so nice” When she was looking at the bed, she had this look like a starving person staring at a steak. This will be some good sleep for her! I then put Jack down and unpacked the rest our vehicle.

I will be extending my time off from work as an electrical contractor through the first of the year.  I want to be sure we are completely settled with all the details of our new routine with outpatient rehab. We will be keeping it mellow thru Christmas as we have not had time to do anything for that. We don’t want to deal with a big tree and all that. Our storage keeps getting more packed instead of more empty as I would like and as some of you know, Elizabeth is a real holiday decorator. Heck, we have like 15 large tubs of stuff... and it does look really nice when she does it up. Unfortunately they are buried in the back to the storage and there is no time for all that.  We thought we would get a small tree and keep it low key this year…. put a few lights on it and buy a cheap ornament set because we can’t get to our holiday stuff without an all day effort to get to the back to the storage. But I then thought it would be cool if people wanted to show support instead of flowers etc., … they would get her an ornament and we would decorate the tree just with these ornaments. They can come after Christmas too as we will have the tree up for a while… and we could use in other years as well. Any show of support in any way is fine by me of course but, if anyone wanted to do that I think it would be fun.

This has been a journey for the last year and a half and today was another significant part of it for us… getting home! To come back to the same Train album I mentioned before, ...with her hand in the air Elizabeth would always sing out this one line of a song on that album… here is that part of the lyrics with that line highlighted in bold from the song  “If It’s Love”

Hold our cell phones up in the air
And just be glad we made it here alive!
On a spinning ball in the middle of space
I love you from your toes to your face

We played that song coming home and she sang that line with her hand in her air! It was great!!!
She is happy to be alive and happy to not have “a bleeding ping pong ball” in her head as she so un-affectionately called it. It was a really uplifting day today! We are so glad to be home and are also ready for Elizabeth to keep getting better here! Nothing like the sleep you get in your own bed!

Thanks again for all your supportive comments. You all are so very much appreciated!!!

It’s great to be home! She has requested donuts for tomorrow morning.. Donuts it is!!!

Thanks,

John

Monday, December 20, 2010

Day 11 Monday, December 20th

Today started out with Elizabeth being up and ready early as usual for the 9 am start time for the first therapy session today. It was an outing to the grocery store. This is to see how patients are doing with these type of day to day activities. She was givien a list of items to purchase. These items would be for another group therapy that would involve working in a kitchen. She did well with this. She was able to navigate her way around the store pretty well and carry a hand cart with about 10 pounds in it. She was able to get in and out of the van pretty easily with me shadowing her.

We then went to speech therapy where she did some complex exercises to challenge her more. Some were following directions through mazes and others were memory exercises. They also worked on speech inflection. Her speech has become much better throughout these 6 days at the rehab center.

The next therapy session was working in a kitchen they have at the facility. It rivals a home kitchen environment. Her job was to make pizza. She said “I love pizza, this is a good activity for me!” On Friday when she learned of this activity her jaw was still hurting so bad that she  said “maybe they can put my pizza in a blender”… She was able to eat the pizza today without the blender.  Others in the group were making salad and preparing fruit. She did pretty well with this exercise. They had her doing multi tasking with clean up as they went. The pizza was really really good.  She talked about how we never made that at home and that we should because its easy, fresh and taste good. After all the cooking was done, we all sat down to eat. It was a fun activity for all.

She then had a final therapy session of the day with the Nuro psychologist. They were really impressed with the change they had seen in Elizabeth since their last meeting on Thursday. That was nice to hear from them…. Elizabeth told them how happy she is to have that thing out of her head and in the past. A life without fear of a ticking time bomb in her head. Now it’s time to continue to get better. Elizabeth told them she was happy with her progress and gave much credit to the rehab center team.

We then went back to the room and she wanted to rest. After she woke up, we talk for awhile about all our plans for getting home. As most of you remember, Elizabeth is being discharged tomorrow! She has elected to ride in our SUV back to California with me and Jack. She has been cleared to either fly or drive. It is about the same time when you put in all the time that it takes to fly before you’re even in the air. She then ate dinner which was good to see. She took a shower with me helping very little. I then got the room packed and ready for tomorrows exit. It was kind of surreal putting away flowers, taking down the pictures Jack had drawn, and pictures of us as a family from the walls. Although this whole thing has felt surreal... I often kept thinking I was dreaming. This was the end of a rollercoaster of emotions we experienced here in Phoenix…. leaving now with momentum that things are working in the right direction.

I then proceeded to my sisters to help with Jack and pack and get ready to leave. Tomorrow will be interesting to say the least with our trip back. I’ll be heading back with a packed SUV, Elizabeth who is recovering still, and Jack. Luckily he’s a pretty good traveler. I hope that is the case tomorrow. I think I heard it’s been raining in our hometown area. Hopefully we don’t get too wet. In reality after what we’ve been through, that all seems easy…

Today is a great day because it’s the last real working day for Elizabeth at the rehab center. We had many hugs with staff here today and will miss them, but it will be great for us to be in our own home!!! The staff here has been incredible! They really take so much care and professionalism in what they do. We couldn’t have made these initial strides without them! They have grown fond of Elizabeth and will miss her too!!!

It will be an emotional departure tomorrow to say the least…. but we are now committed to Elizabeth getting better and we are looking forward to our new life without a cavernous angioma!!!


Elizabeth and I have always had a great perspective on the appreciation of life and how important that is and now that’s just a little bit sweeter…just like our love…. It just keeps getting better!!! My love for her and Jack is simply immeasurable!!! Elizabeth is truly like that oak tree I keep referring to!!! I will leave it now for you to read. It is a remarkable poem that is an example of Elizabeth’s incredible strength to endure!

“The Oak Tree”

A mighty wind blew night and day.
It stole the oak tree’s leaves away,

Then snapped its boughs and pulled its bark
Until the oak was tired and stark,

But the oak tree held its ground
While other trees fell all around.

The weary wind gave up and spoke,
“How can you still be standing Oak?”

The oak tree said, “I know that you
Can break each branch of mine in two,

Carry every leaf away,
Shake my limbs and make me sway,

But I have roots stretched in the earth,
Growing stronger since my birth.

You’ll never touch them, for you see,
They are the deepest part of me.

Until today, I wasn’t sure
Of just how much I could endure.

But now I’ve found, with thanks to you,
I’m stronger than I ever knew”.

Thanks everyone for all your continued support. We appreciate so much. It is very powerful!

Thank you, thank you, thank you,….

The next post I write will be from home sweet home!

Thanks again,

John

Sunday, December 19, 2010

Day 10 Sunday, December 19th

Today, Sunday December 19th, was our fifth day in the rehabilitation center. I arrived at around 10 am on this day as it was on off day for the center. I helped my sister Rebecca get Jack going and then got to the center at around 10ish. By the time I got there she had already gotten dressed, ate breakfast and had worked out in the gym with mild exercise she can do on her own. When I arrived I thought she looked spry. We decided to go for a walk in the long hallway that leads to the facility. It was a nice walk because I was really seeing the improvement she has made in 4 days at the rehab center. Each day I see a nice little jump… now they are starting to add up. On the way back we sat at a group of chairs in this hallway outside the rehab center to take a load off and read comments on the blog on our laptop computer. I told her “this is where I would sit and write on the blog sometimes” she said “this spot doesn’t look to inspiring” as it’s kind of a dark cave looking hallway. I said “you inspire me, what more would I need”. Elizabeth does inspire me… she shows me everyday how you can overcome adversity. She is determent to do her best always! And she is always doing it with humbleness and gratitude. We read a re-read a lot of comments on the bog sitting there this morning. We talked about the comments and cried some too… good tears though…. us realizing how much we’ve been through in a little over a week, and how far we’ve come but also realizing the challenge ahead of us. Love is a very powerful thing…. and ours runs so deep! It’s always empowering us… empowering us as a family. We love that little boy so much! Words just can’t describe it. Jack is only 22 months and won’t remember any of this but he is an intricate part of our strength as well. I think of it as a triangle constantly pushing love and energy around were it is needed. After long days at the hospital, I would come home after one of these heavy days and he would always put me in check. His hugs are more uplifting than ever. I think it’s crazy how a 2 year old can help keep his old man’s head screwed on straight! He has obviously inspired Elizabeth too as I have posted of in the past. It was a nice moment for the two of us sort of away from everything. I think the best part was when she got up to go the bathroom in the hallway. I watched her walk away from me and I thought to myself wow, she really is walking and moving better. It was really exciting for me to see that. On her way back from the bathroom she was walking toward me and I gave her the thumbs up as I told her “you’re really doing good!”

It was lunch time by this point and we when back to the room to see how it looked. Some meals are not too bad and some she just not into. This was one on the not into meals. I then ran down to the cafeteria and got her a lemon chicken thing and some potatoes that she liked…. and chocolate cake which is her favorite. She ate well. Her appetite is definitely back and the jaw is better so that helps with eating too! She then rested for awhile.

Becky from the agioma alliance had contacted Elizabeth to see if she was up to a visitor. Elizabeth said sure and she stopped by this afternoon. Becky, who lives in phoenix, had a cavernous angioma removed 4 years ago. She is an advocate for the alliance and is VERY appreciated. She has mentored many people through this process. She is doing good work! She has helped Elizabeth and me so much. We talked for awhile in Elizabeth’s room and then walked over to the Neuro recovery area where another friend from the angioma alliance was recovering. Her name is Mea and she has surgery this past Friday. She is doing well with no complications. It was nice as they all got to meet in person for the first time and chew the fat about cavernous angiomas. They were all really nice people and Elizabeth thought it was so nice to do that today.

We then walked back to the room and it was dinner time. It was turkey with all the fix’ns. It tasted good to her and she then wanted to rest. I left her so she could sleep and I went back to my sister to get jack ready for his visit to the hospital. Elizabeth was anxious to see him. Jack and I arrived back at the rehab center to Jack saying “Hi” and then “Bye” while waving at everyone as we walked into see Elizabeth. It made the staff laugh and Elizabeth smile. It was another great meeting for them and we did some books and then a walk and then to the gym (Jacks favorite place there). It will be so nice when Elizabeth can hold him again. She is really missing that. It was getting late for Jack and we proceed to have our 20 minute goodbye session. She just doesn’t want to let him leave as we say ‘just one more hug… one more kiss”. It was another really nice visit!

Again, another good day with strides in the right direction!

Thanks again for all your nice comments. We are reading and re-reading them always!

I will post tomorrow night.

Thanks,

John