Welcome to our blog! I originally started this blog in November 2010 just prior to having a major brain surgery to remove a large bleeding cavernous angioma from a deep part of my brain. You can best understand the gravity of our experience by reading the first several entries.(Nov 2010-Dec 2010) I wrote the first one and my sweet, adoring husband, John, wrote the next several (while I was too sick to do much of anything) that documented surgery, immediate recovery, and our reaction to the surgery complication (stroke)that was revealed 2 days after surgery. This recovery process has been difficult but we are making it. We appreciate all the kind words of encouragement we have received and we would like to thank everyone that has participated in helping us along this difficult journey. Also, if you have any questions about my personal experience, please leave them as a comment or contact me directly at firstname.lastname@example.org and I will respond although I am not a doctor and this is not a replacement for medical care or advise. Please ask a real professional, or probably several. :) I hope to be able to help at least one person along the challenging road of brain surgery and recovery.
Saturday, January 29, 2011
Rehab has finally started
And it feels good!!! I'm so excited to have finally started rehab this past week. My insurance never did agree to cover "day" treatment, but I am getting a ton of great rehab anyway. We now have a plan to get me strong enough to get back to taking care of Jack, which is my number one goal. I'm just so weak still (and he's getting bigger everyday), but I'm doing all the exercises I can to regain my strength and hopefully endurance will come with time.They have also figured out more of what is wrong with my eyes in 3 days than I have in the past two years despite multiple doctor visits in the last two years. I'm sooo thrilled with this rehab team so far. I finally have a neuro-opthalmology appointment on Monday, so it will be very interesting to see what he decides is wrong since. The rehab said my eyes should get better, but maybe not 100% better because I've had these issues for so long already and there is a possibility that some of the muscles may have atrophied over the past two years, but I'm just going to keep working on them, and hope some of my eye issues resolve. On Friday they gave me a test for depth perception, and apparently I have almost none. She said, "It's amazing you are doing as well as you are. You don't fall down much do you? " I told her no. I haven't fallen down at all. I'm clumsy, but that is nothing new, maybe my eyes have been my problem all this time. :) It's just crazy to me how your body is able to compensate and learn how to do stuff despite major deficiencies. I just hope and pray that if I do everything they tell me to do at rehab, than I'm going to be better before too long. So far, so good.