Welcome to our blog! I originally started this blog in November 2010 just prior to having a major brain surgery to remove a large bleeding cavernous angioma from a deep part of my brain. You can best understand the gravity of our experience by reading the first several entries.(Nov 2010-Dec 2010) I wrote the first one and my sweet, adoring husband, John, wrote the next several (while I was too sick to do much of anything) that documented surgery, immediate recovery, and our reaction to the surgery complication (stroke)that was revealed 2 days after surgery. This recovery process has been difficult but we are making it. We appreciate all the kind words of encouragement we have received and we would like to thank everyone that has participated in helping us along this difficult journey. Also, if you have any questions about my personal experience, please leave them as a comment or contact me directly at thankfulforeveryday@yahoo.com and I will respond although I am not a doctor and this is not a replacement for medical care or advise. Please ask a real professional, or probably several. :) I hope to be able to help at least one person along the challenging road of brain surgery and recovery.

Saturday, January 29, 2011

Rehab has finally started

And it feels good!!! I'm so excited to have finally started rehab this past week. My insurance never did agree to cover "day" treatment, but I am getting a ton of great rehab anyway. We now have a plan to get me strong enough to get back to taking care of Jack, which is my number one goal. I'm just so weak still (and he's getting bigger everyday), but I'm doing all the exercises I can to regain my strength and hopefully endurance will come with time.They have also figured out more of what is wrong with my eyes in 3 days than I have in the past two years despite multiple doctor visits in the last two years. I'm sooo thrilled with this  rehab team so far. I finally have a neuro-opthalmology appointment on Monday, so it will be very interesting to see what he decides is wrong since. The rehab said my eyes should get better, but maybe not 100% better because I've had these issues for so long already and there is a possibility that some of the muscles may have atrophied over the past two years, but I'm just going to keep working on them, and hope some of my eye issues resolve. On Friday they gave me a test for depth perception, and apparently I have almost none. She said, "It's amazing you are doing as well as you are. You don't fall down much do you? " I told her no. I haven't fallen down at all. I'm clumsy, but that is nothing new, maybe my eyes have been my problem all this time. :) It's just crazy to me how your body is able to compensate and learn how to do stuff despite major deficiencies. I just hope and pray that if I do everything they tell me to do at rehab, than I'm going to be better before too long. So far, so good.  

6 comments:

  1. So glad to hear you got into the rehab! I was hoping it would be soon. Gotta be a relief that you are finally starting on your rehab recovery!

    -Christopher

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  2. Yay, Elizabeth!!! I'm so happy to hear your good news. It's gotta be a BIG relief to you & John. :)
    Keep up the inspiring progress,
    PattiG :)

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  3. Hi Elizabeth, John & Jack
    We are so happy to hear of you progress. You continue to be in our conversations, thoughts and prayers. Thanks for the update!
    Love, A Cathy & U Joe

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  4. OMG Jack is soooo big and so cute....We really miss seeing him!! We're really happy that you are finally getting rehab. Good luck with your healing and wishing you 100% recovery as soon as possible!! xoxo
    Juliet, Mike and Gavin

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  5. Elizabeth! So glad you are getting some rehab! I prayed real hard for you!!! and ... OMG! What a precious picture of Jack at Christmas time. The photographer must have really loved that little guy to have gotten such a great shot! :) Hee Hee! Can't wait to see you all soon!! Rebecca/Aunt Becca!!!

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  6. I'm so glad that you're able to start the rehab program. Hopefully the insurance companies will recognize how necessary it is for your recovery and start to pay for it. That just doesn't seem fair.

    Jack is so big. I love the picture of him at Christmas time! I hope your recovery keeps moving in the right direction so you can spend more time with the not-so-little young man!!

    Love, Britt

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