Hold the balloons, and the champagne...it is a bittersweet milestone. While I am happy to have completed one part of my formal rehab program, it is with some degree of disappointment that I am discharged from some part of my therapy and still not 100% recovered. While I do know the statistics,"It is very uncommon and pretty unrealistic to think I'm going to ever be back 100%"...I still hold onto that hope and dream in my heart. At the same time, I know how lucky I am to have made this much improvement already. I also know that just because one part of my formal rehab has concluded, that does not mean that my opportunity to improve is over! It just means that I'm going to have to work that much harder and really step up my game to make changes. Last Wednesday was my last day of occupational therapy, not because I'm "cured" or all better, but because I have met all the goals that were laid out and partially because I think they are not used to having patients that are as "high" functioning as I am. Many people are discharged, sooner, and with less ability to function. I have been very lucky(not to say it came easy, this rehab stuff is hard work...mentally and physically). I can now do so many things, which is awesome!! But don't expect me to do more than one thing at a time...just not happening yet. As part of my last OT assignment they had me cooking something and trying to manage distractions. I'm not sure how exactly they rated me as doing "well" because while I did make some really yummy Smores cupcakes, I left the stove AND oven on. Whoops! This is not the first time, I leave the stove on almost every time I cook. They suggested I set a timer to remind myself about the stove, but I forget to set the timer. ;) Still trying to work on that, and in the meantime I never cook when Jack is awake...way too dangerous. I just can't remember anything....it's one of my biggest obstacles. I'm really thankful and grateful that my speech therapy is not over yet...she said she will be working with me for at least another month and I hope to continue to progress. No rest for the weary around here. As always, we'll stay focused on how much better I am and all the things I can do!! And of course, still, thankful for everyday!
Welcome to our blog! I originally started this blog in November 2010 just prior to having a major brain surgery to remove a large bleeding cavernous angioma from a deep part of my brain. You can best understand the gravity of our experience by reading the first several entries.(Nov 2010-Dec 2010) I wrote the first one and my sweet, adoring husband, John, wrote the next several (while I was too sick to do much of anything) that documented surgery, immediate recovery, and our reaction to the surgery complication (stroke)that was revealed 2 days after surgery. This recovery process has been difficult but we are making it. We appreciate all the kind words of encouragement we have received and we would like to thank everyone that has participated in helping us along this difficult journey. Also, if you have any questions about my personal experience, please leave them as a comment or contact me directly at firstname.lastname@example.org and I will respond although I am not a doctor and this is not a replacement for medical care or advise. Please ask a real professional, or probably several. :) I hope to be able to help at least one person along the challenging road of brain surgery and recovery.